After more than 10 trips to the hospital with Marwan and with still no treatment on the horizon, and the cancer getting bigger and bigger we took him to a priest locally who we had heard has sent children with similar problems abroad for treatment. We had to get a letter of referral from the hospital where he had been seen so the priest could send that and Marwan's scans to a hospital in Ghana to see if they will agree to treat him.
We have to see the priest again tomorrow to find out if he's heard back from the hospital in Ghana yet and if we get the go ahead then we'll have to move as quickly as possible to arrange passports and flights for Marwan and his Dad.
I've been very disillusioned......the staff at the hospital here just didn't care......the nurse who reluctantly changed his dressing was so rough with him and caused much more pain than was necessary. The doctor was much too important to give us any time and just kept sending us for test after test after test rather than just admit that he either wasn't able or wasn't willing to operate on the boy. (This is NOT the AHS Hospital at Waterloo that I usually go to - if Dr Koroma could have helped he would have).
I feel really sorry for the boy's Dad too - Marwan is all he has......he had a teenage son who sadly died earlier this year....and now he's having to deal with this.....I don't know how he'll cope if he loses Marwan too.
I spent some time with Marwan today and he seemed more perky than the last time I saw him - he's obviously very scared and in a lot of pain, but I had a wonderful cuddle with him and although he didn't talk to me he nodded or shook his head to answer my questions. He's a beautiful, wonderful little boy and I feel so sad for him.
I'm praying for him, please join me if you can......
I'm praying for a miracle for him
I'm praying he'll be cured
I'm praying we'll get good news from Ghana
I'm praying he'll be free of pain
I'm praying he'll get to go to school
I'm praying he'll grow up and have a family
I'm praying he won't die
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